Friday, April 22, 2011

good news

a little entry for a little good news

on Monday Laurie, Dr. Elias' nurse, said that the doctor on the new study would get back to me in a couple of days

today, Friday, I decided to give Laurie a call. left a message.

Laurie called back in a few hours. but by then I had heard back from Dr. Gore's office, and had an appointment for 11am Thursday the 28th.

I am thinking that they wouldn't have make make an appointment to tell me, sorry, there's no room in the study.
so I'm going to pretend I'm past one hurdle.
I'll hear all about the second one, the needle biopsy, at the appointment, I'm guessing.

Dr. Nemechek had called a week or so ago, and I poked my head into his office right after. I wrote a long email to Jane, the very caring front desk woman at his office; the next day, Andy called again and I was able to speak with him.
he said they did needle biopsies all the time, that they can be useful...this is the guy who said, hearing about my biopsy at our first meeting, "you don't poke it with a needle!!!" but he tends to make blanket statements and later blanket retractions...

if the drug they're talking about is Nutrin-3...and Dr. Nemechek said it is...there's some amazing stuff about it online. in lab tests it's been 93% effective.

Dr. Nemechek also said, a good resource for finding cancer studies is the NIH-NCI site, which lists all federally funded cancer studies. (not those sponsored by drug companies)
I think the more we know, the more we know.

and finally to the important stuff...gee I sure hope some folks come out to the Lost Alamos show the evening of April 30th at the Harmony common house in Golden. Brian and Vicki are wonderful, talented, crazy people, and no one works harder than they do on their performances. you get some sense of it on our YouTube videos, but last show we needed 14 instruments to get through it. we're hard on instruments. no, not like Pete Townsend, but the results are smashing...

more later

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